Today was another good day. She urinated enough that they decided to skip dialysis today and her creatinine was back in the normal range, which is a huge improvement. Hoping and praying they are going to move the dialysis machine out of her room tomorrow and we will never see it again! She was…
A good day!!!!
Today started out great because when I woke up I realized they had decreased the ventilator settings during the night and they were the lowest they have been and her oxygen levels were still good. I knew it was the right day to take her off the ventilator. I walked over to the bed…
Tiara update, she is still on a ventilator….
So once again Tiara wasn’t able to get extubated today. We finally got into her new room at 1am last night and I was woken up at 6am for x-rays to learn Tiara had spiked a temperature to 104 degrees. What? Now what is going on? The nurse cultured every line again but nothing…
Tiara update, Shingles, really?
Shingles? Yesterday the infectious disease doctor came by for her regular rounds while we were changing Tiara’s diaper. The nurse asked her to look at Tiara’s skin where she had the breakdown and asked her opinion of what she thought it was. The doctor said, “hummmm, it looks yeasty but looks more like shingles than…
Tiara update: And now Dialysis…..
I returned to the hospital this morning to find a sedated Tiara with a fever of 102.5. The nurse took samples of blood, urine and saliva searching for a cause of the new fever but nothing has revealed itself yet. As for the lungs, they look better but the kidneys have stopped cooperating. They…
Tiara update, one step forward, half a step back…
Not much to report today but I didn’t want to leave you hanging without any information so here is the most recent update. Tiara has remained stable and there was a slight improvement in her x-ray this morning. Her kidneys continue to improve as well and since the kidney issue was deemed an “acute…
Tiara update, she is improving!
Good news, Tiara is finally improving. Her x-ray from this morning showed significant improvement in her lungs. At 6am this morning her kidneys started working better which in turn allowed them to get fluid out of her lungs thereby resulting in the great x-ray. The doctors still aren’t sure why her kidneys stopped…
Tiara update, April 2, 2013, more problems
Today was a very eventful day for Tiara and not in a good way. She woke up at 4am and tried to lunge out of bed. Luckily the respiratory therapist and I were standing bedside at the exact moment she did this. I grabbed her hands and she started fighting so hard I had to…
Not really better but not worse…
I expected today to be fairly quiet but as always Tiara never likes to follow protocol. She woke up early and was trying to pull at everything even though she is constantly getting medication to sedate her through an IV. Anyone else would be in lala land with that much medicine in them but not…
They put her on a ventilator…
I am starting to hate my own posts because they are so depressing and I have a hard time believing this is all happening to my Tiara. Easter Sunday her oxygen levels continued to go up and down but mostly stayed low, even though she was in fairly good spirits. She was laughing…





