You’re so pretty!

This is Lou’s favorite thing to say to all his girls.  The funny thing is that if Tiara is in earshot of any compliment given to anyone but her, she immediately jumps to attention, pats her own chest  and says “me, me!”  This morning Lou and I were standing in the kitchen watching Tiara eat and he decided to tease her.

He then said, “Tiffani you are so pretty.”  But before she could pat her chest and ask for her own compliment he said, “Ohhhh, Tiara you are soooo pretty, too.”  She lit up like a Christmas tree smiling and hugging herself.  Yes, she likes to hug herself and say “love you, love you.” So there is the sweet moment from the entire weekend.

I am trying to focus on the positive, cute things that happened this weekend because it was a bad couple of days, once again.  After hearing from her doctors on Friday we decided to increase one of her seizure medications.  I did it on Saturday and didn’t notice any positive improvements but I wasn’t expecting to since it usually takes some time to see a change.  She does seem much more tired and I was going to include a picture in this post BUT once again I don’t have a phone.

You may be wondering how it is I let her take my phone on a daily basis and then lose track of it?  As my Mother would say ” why can’t you keep your phone away from her?”  Well apparently I’m just not that smart or I am exhausted, worn out and without superpower skills at any particular moment. 

Sunday afternoon Tiara was freaking out, hitting, kicking and yelling at me when I offered to call her grandma.  She was so happy and excited that the moment her grandma answered the phone she disappeared.  Yes, I should have followed her but it is always at that moment I breathe a sigh of relief and then realize before the other participant hangs up I should be watching Tiara and my phone.  Once they hang up, I hear yelling, anger and chaos and realize I am back on duty.  By that time it is too late because when they tire of the one sided conversation and hang up she chucks my phone and it is lost.

Today I think the ringer was off from church and so finding it has become impossible.  Luckily it isn’t in the neighbors pool because I already asked them, so it must be in some bush in the backyard.

As for the rest of my family and my life, I have decided I would rather get beaten by Tiara on a daily basis than help Trinity study.  I know it sounds horrible but I don’t understand the way she thinks or rather her lack of trying to go above and beyond the minimum required and it drives me insane.  It is when I study with Trinity or rather try to help her study that I most question my role in life.  Why me, why me, comes to mind every minute.

I can do special needs and violence but a healthy brain that thinks differently is soooo much harder for me.  It is my biggest challenge. 

Hope you all had a wonderful weekend.

xoxo tiffani