The reason I am even telling you about these embarrassing moments that happen all the time is because it happened in front of her neurosurgeon on Monday and I was rather surprised by his reaction. I figured it wouldn’t even phase the man. He spends his day dealing with children who have epilepsy and in many cases then performs brain surgery on them to try and stop the seizures. He has personally told me how devastating seizures are to the brain and it is his life’s work to try and stop the seizures so kids can grow and develop normally. So a man like this wouldn’t be fazed by an inappropriate burp. Wrong! He was shocked and actually stopped talking midstream to stare at her. I of course went straight for my ” say excuse me, Tiara.” She hedged a while, but he waited for her to respond to which she said “ce, ce.” He then said something funny like ” I guess you don’t take her out to win friends and impress people.” His comment surprised me and kinda sat funny with me, but I just changed the subject and went right back to talking about her MRI images.
I woke up thinking about his response to her burp this morning. I realized that even though he has devoted his life to helping these children, he doesn’t really understand what life looks like when you have seizures everyday. You do inappropriate things, you act inappropriately, you say inappropriate things but you can still impress people and win friends despite all this. I also realized yes, he too is human. He may be a brain surgeon and save lives but like the rest of us he isn’t perfect. I still adore him and am super grateful to have him as Tiara’s doctor.
Happy Wednesday, and if you see us in a restaurant, BEWARE.
my daughter is 43 years and yes she has autism to funny very she loves to dance and make strange voices love her to bits she is not aggressive at all quite opposite love her to buts