Today was a very eventful day for Tiara and not in a good way. She woke up at 4am and tried to lunge out of bed. Luckily the respiratory therapist and I were standing bedside at the exact moment she did this. I grabbed her hands and she started fighting so hard I had to jump on top of her while the RT held the tube in her mouth.
The RT screamed for help and for the next 2 hours four of us sat there holding her down while the nurse pumped her full of meds until she finally gave in to the drugs and stopped thrashing.
At this point I assumed she was getting better based on her strength so I was very surprised to hear the doctor say at rounds “ Tiara is getting sicker. Her x-ray from this morning was worse than yesterday’s and she is in renal failure.” What the hell? Renal failure, how did that happen? I was shocked as they started talking about dialysis, adding an central line, an arterial line and consulting with nephrology and infectious disease.
Her biggest problem is that she has too much fluid in her lungs and because her kidneys aren’t functioning properly she isn’t able to get rid of the fluid, thereby making the pneumonia worse.
At the end of rounds her doctor walked into the room with me and said “ she is going to get better, but it is going to take some time.” I was very suspicious of this statement because I didn’t ask him if she was going to get better and I have never had a doctor say that to me.
Even though all of this was happening and I had been up since 4am I had to leave Lou in charge while I went with Tabitha and Trinity shopping for the party. In 6 hours we got all the party supplies bought, went to the market, ordered the cake, went to Target, went and bought the rocks for the patio and went to the Home Depot to get some new patio chairs. I filled in the area between the cement with the pretty pebbles and I love it. You guys were right it was the perfect solution. Plus thanks to Tina I knew exactly where to buy the pebbles.
We got pretty much everything done so I won’t have to worry on Friday. While I was gone The doctor put in both the central and arterial lines and sent her for a Ct of the brain, just to be safe. She is currently on propofol to keep her sedated and is staying asleep, which is much safer for her. She is going to get a renal ultrasound in a few minutes so I should know more about the state of her kidneys by tomorrow.
Keep praying please!
xoxo tiffani
I’ve been reading your updates, and I want you to know we are praying for healing and answers! I wonder why the doctor would give you a timeline when they haven’t before. I know you must feel so exhausted by the whole process of keeping her safe and being mom and wife. Hope you have a good night’s sleep tonight.
Oh the prayers… Come on Tt! Heal baby…heal!
Tiffani…I send prayers to you and your family. How tough it is to watch your child so ill. But, know you have many prayers heading your way.
We’re still praying for Tiara, and for you all…. trusting that God is healing that sweet girl of yours!
Oh Tiffani, I am so sorry you and your family is going through this. I am sending healing vibes to TT. 🙂
praying for Tiara xoxo
Still praying Tiffani and truly sending all the good thoughts I can your way for Tiara.
I’m so sorry to hear this. I’ll be praying. Stay strong. hugs and kisses!
Okay, this is just so strange. You’ve never mentioned her kidneys being compromised in any way, so how is it her kidneys are shutting down now? The whole thing doesn’t make sense – especially that the slightest decrease in the sedation and she appears to have enough oxygen power to take down a few adults. It doesn’t add up.
Regardless, I know wherever your body is (prepping for party, shopping, whatever), your mind and your heart is in Tiara’s room – and she knows it too.
TRY to get some sleep soon ’cause one day soon she’ll be off the vent and you’ll have to chase her down the hallway. Wishing you well.
Again, you are in our prayers xoxox
Praying for Tiara. Your always in my thoughts.
Oh no…..this is heart breaking news. Sending our love. xoxo
gray and michelle
~beLIeVE in miracles
I am new to your site, not sure how I stumbled across it to be honest, but I want you to know that I am praying and will continue to pray for healing.
Thinking of you and your family.
Take good care, Kate x
Praying for Tiara! Stacie xo
Hoping Tiara is doing better today . Don’t be suspicious of the Doc’s comment. Most parents who haven’t dealt with all the hospital ordelas you have would naturally worry if their child was going to get better! I remeber when my child was in the hospital and I was so afraid and the Doc telling me that your baby is going to be fine were the most comforting words I needed to hear. So I think his heart was inthe right place.
Sending my love and prayers your way….
My heart sinks every time I see an update and things get worse. I am so sorry Tiffani and I hope that Tiara starts to recover soon. I hope you get some rest love.
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(¸¤ Lanaya | xoxo
http://www.raising-reagan.com
So sorry Tiff! I am thinking of you every minute and praying for all of you.
Love you,
Mara
I’ve been keeping up with your updates, Tiffani, and I am so sorry you have to go through this. You and your family are always in our prayers.
Love, Maria
thank you for the update. sorry things are so unstable right now but keep the faith and she is fighting! Hope the party is wonderful and you can enjoy it. Praying for TT:)
If I was the doctor and thought it would help for you to know how I felt about Tiara’s prognosis I would tell you. What you just experienced was so scary, you obviously needed to be reassured. I am sure that the doctor understands your anguish and how Tiara is suffering. How do you keep going? your daughter will have equal inner strength; please God.
I will pray to Christ for Tiara. Your post shows life is about everything sorrow and happyness. And everyone should live it full, thinking it as a duty that God thought only we can do. So He gave this to us.