So yesterday Tiara had a long overdue check up with her neurologist at UCLA. I have been trying to get her appointment since last December but they couldn’t get her in until yesterday. FYI, they have the best epilepsy department on the West Coast but you can’t really ever get in to see the…
violence
Who do these kids belong to?
I know this may seem a little weird posting pictures of some kids I don’t even know, but they are hilarious and made us laugh so much I had to share. Sunday after church, the girls and I all went to Fashion Island with my parents for lunch. We can never decide…
What I have been hearing around town….
So apparently, I have learned from several sources that people are concerned about me after reading my posts. I so appreciate your concern, but what some of you may not realize is that most likely by the time you have read my post for the day, whatever issue I was complaining about or fretting…
It was a little crazy, but fun…
Well as you can see I ended up in the dreaded middle seat for the 6 hour drive home. After contemplating who should be injured and abused stuck next to Tiara I decided I might as well do it since I am used to it. Our original plan was to put her in front…
road trip in the prius…
So when you are reading this today all of us, except Tabitha, will be piled in my Prius driving to Northern California. Let me just tell you, Lou is so not excited to be driving “the tin can” up the 5 freeway. When we decided to make the trip for his Auntie…
I took Monday off but I’m back…
As you probably noticed I did not post on Tuesday. I know you noticed because several people brought it to my attention and a family member actually called my hubby to make sure everything was ok. I write my blogs the day before they magically appear on the web and I was a zombie…
dreading the day….
Woke up Friday morning at 5:45, totally dreading the day. Lou saw my eyes fly open and said “what’s wrong”? He could tell from across the room, I was already spinning and I had just woken up. I had found out Thursday, that the MRI follow-up I have been trying to schedule for Tiara…
another one of those days….
I have been writing this blog for one month now. When I started posting last month, I had no idea my journey with Tiara was heading for this direction. I sensed her agitation was increasing, I saw more daily seizures, I felt the increased pinching and hair pulling but I was hopeful that our lives…
I know how I will die…..
I know this sounds rather morbid but it is something I think of often while driving around town with Tiara. I envision myself driving when I am suddenly struck in the head with a flying object, my head hits the steering wheel, my car careens off the road and it crashes into a telephone…