I haven’t written a post or gone on Facebook since we got home from the hospital on Tuesday afternoon. Why? Yes, I still love you all, but taking care of Tiara at home is a huge job. I was so happy to get home, I almost forgot how hard it is after a long hospital…
tiara & special needs
Good news!
I skipped my Monday post as I was a total basket case. I don’t really want to relive what happened Sunday night but here is the reader’s digest version. After not sleeping for 25 hours the nurse thought it would be a great idea to wake up Tiara at 2am and make her cough. I…
Tiara update 1/29/14
I know I said I was going to take a few days off from posting but I changed my mind. I just wanted to reflect on the dinner I had last night. Every Tuesday a free dinner is provided for the families who have children in the icu. The dinner is donated by a restaurant,…
Tiara update 1/27/14
Today hasn’t gone as well as expected. Before rounds last night Tiara spiked a fever and they said she couldn’t have Motrin because of her kidney issues and the blood thinners. This really upset me because Tylenol does nothing to help her fevers. Then the docs decided she didn’t need her lasix drip any more,…
Update on Tiara 1/25/14
Let me start by saying that if you want more current updates on Tiara please feel free to friend request me on Facebook(tiffani Whitaker goff) I tend to update my personal page more than anything else. Now for the update. Friday afternoon we decided she was struggling too hard to breathe so they intubated…
This whole thing sucks!
Not really in the mood to blog but I know so many of you care about Tiara, so here is the update. Just met with the doctors for rounds and they said her lungs are almost whited out like last March and she is getting sicker. They would like to intubate her now but will…
A day of destruction….
Yesterday while Tiara was lounging around the house trying not to get sicker, she managed to break 3 major items, all of which I love. The first was a big tall vintage blue vase that sits on my TV console along with 2 others. To be honest it is a miracle they have been there…
I’m half done!
As you can see I decided to change my blog theme today, but I am not totally done. To be honest, I am far from done, but it was pretty painless which is beyond exciting. Total miracle. I realized how much I have learned in the past 2 years as I start this transition today. …
She did it!
Sorry for my lapse in posting yesterday but I was too grumpy, anxious and irritable to write anything decent. I was feeling very uncreative and not passionate about anything except complaining. I hate when I start complaining. It feels so bad to be so negative. I kept telling Lou paperwork was getting the best of…
Do people really like this weather?
I hate to complain when people on the east coast just dealt with the “polar vortex” issue but really, I HATE the SANTA ANA WINDS. I have hated them my whole life, and nothing has changed. As a child I always remember them showing up during the first week of school. I would be excited…