Yesterday I was bragging to Tiara’s teacher that she has been doing so well. She has been more verbal, following directions and overall just good. I have been asking her to throw things in the trash, help clean up and she has been doing it. I have been so excited and then last night her…
tiara & special needs
I don’t have a choice, really?
Often I hear this statement and I just shake my head in disagreement. We always have a choice, whether we like the options or not, that is besides the point, we as humans have the ability to choose how we live our lives. There is one area of life that drives me crazy when I…
What’s wrong with my eyes?
Well my Monday didn’t start off great. I hardly slept the night before for several reasons, one of which was that Tiara kept getting out of bed and wandering the house. Trinity had another bad dream and tried to make me sleep between her and Tiara. I hate being sandwiched. I moved to the couch…
She did it!
Yes, Tiara survived her annual MRI at UCLA and she did great! We left the house at 4:30am, and arrived at 5:30 am, just as planned. The driving in the dark was the worst part for me, even though Tiara had a blast. She sang and danced all the way their. Once we checked in…
Tiara, my lucky leprechuan…
If you receive my posts via email in your inbox 5 days a week, I hope this post was there when you woke up this morning. Once again I changed email companies and I have no idea if everything worked correctly. Why did I change again? First because lots of readers complained about how difficult…
My thoughts on medical marijuana and epilepsy
Everyday I see this topic in the news, see it talked about on Facebook and/or actually receive inbox messages regarding it. Some proponents of medical marijuana act like it is a cure for everything which I don’t believe. What I do believe is that medical marijuana can significantly help some people with certain medical issues. …
Tt is back to her old self!
It’s official. Tiara is finally back to old self, pre-hospitalization. She is back to jumping on the trampoline, playing basketball, swinging on her swing, and stealing food from the pantry. The house stayed clean for several weeks when she wasn’t able to walk freely, but now it is back to it’s original state of torn…
And she is finally doing better…..
Before I tell you about Tiara, we have to talk about Valentine’s Day again. Sorry. Well as you remember I mentioned I wasn’t doing anything and Tabitha sighed in response to my comment. Well, I now know why she sighed. I guess she thought it was her responsibility to do something if neither Lou nor…
Still stressed….
Well, I am writing this on Tuesday night and nothing much has changed. I am still a bundle of nerves and something is still wrong with Tiara, yet I don’t know what it is. I took her to the doctors on Monday and they spoke to Nephrology and ordered stat blood work. The blood work…
Her kidneys still aren’t behaving themselves!
I pretty much did nothing this weekend except worry about Tiara and take care of her. Tiara has been very quiet and seems to being having lots of seizures. I kept meaning to email her neurologist to see if she thought we should increase her medications while she is still recovering and I finally got…