So yesterday Tiara had a long overdue check up with her neurologist at UCLA. I have been trying to get her appointment since last December but they couldn’t get her in until yesterday. FYI, they have the best epilepsy department on the West Coast but you can’t really ever get in to see the…
tiara & special needs
Last year at this time….
As I have mentioned in previous blogs, I don’t usually dwell on the past. But because I have been trying to raise awareness for Tuberous Sclerosis this month, I keep thinking about this same time last year. It was during this same week after Mother’s Day that Tiara was supposed to be recovering from…
What I have been hearing around town….
So apparently, I have learned from several sources that people are concerned about me after reading my posts. I so appreciate your concern, but what some of you may not realize is that most likely by the time you have read my post for the day, whatever issue I was complaining about or fretting…
Team Tiara, stepping forward to find a cure…
May is National Tuberous Sclerosis Awareness Month. In an attempt to help find a cure for TSC and bring awareness to Tuberous Sclerosis our family has formed “Team Tiara” for the upcoming TSC’s Step Forward to Find a Cure walk in Long Beach on May 19, 2012. It is estimated that every…
How did this happen?
This is one of my best friends from college, Laura. She was, note the emphasis on was, an amazing graphic designer in her day. She has 4 girls and as a result hasn’t worked in 15 years. I have been bugging her about my logo for my blog, because I don’t have…
Why do I even bother?
Have you ever done something nice for someone and then immediately regretted it? That is how I felt today. Spring Break was so long and now that everyone, except TT and I were finally back to work and school, I thought it would be nice to do something new with Tiara. She is always…
Someone please tell me spring break is over!
Spring break, Summer break, Christmas vacation, ski week, all wonderful times for everyone else, but a nightmare for me. A break, means a change in routine and that means trouble in the Goff house. While everyone else in Newport has gone to the desert, we have remained at home, like always. This is not a…
What is worse, no eye cream for the morning or bouncing a ball inside Neiman Marcus?
Decisions, decisions. When I woke up this morning and put on my eye cream, I realized I was almost out. I checked my back up stash and it was empty, OMG this is a catastrophe. As you realize from reading my blog there are a few things I am really hung up on. I…
Who burps really loud in public?
Well, Tiara does and she thinks it is really funny. If it weren’t so embarrassing and rude to the other people around us I would think it was really funny too. OK, I am lying, it is really funny, but I try not to laugh when she burps in public because I don’t want to…
I woke up every hour…..
I hate when I have something super important scheduled for the early morning because you can never the sleep the night before. I usually set 2 alarms but invariably I wake up every hour look at the clock and do a mental count down how many hours of sleep I have left. Today I…