So, as most of you know, I took Tiara to the fair yesterday. It was super humid and hot but I decided to forge ahead and follow through with my plan. At 3:30 Trinity and I loaded up the car, with 15 cans of food because every person who brought in 5 cans before…
tiara & special needs
Have you ever done a crayon sweep?
As all my regular readers know, Tiara has a serious obsession with crayons. I usually buy 5 packs every time I visit Target and hide them in the hall closet. Everyday, she asks “more crayons, more crayons.” even though her basket is overflowing. She just loves the smell and feel of the new crayons. …
Where is the brush?
You may find this hard to believe but it is practically impossible to find a brush in our house. You are probably thinking, well if you just keep it in a drawer I am sure it will be there tomorrow when you look for it. If only it was that easy. The truth is…
Re-entry is always hard…
So I am forgoing my normal Monday post , My Journey with Tiara, as I am way too emotionally and physically tired, to rehash Tiara’s past medical history. In addition, that post always takes me several hours to write and I don’t have several hours to spare today as I am having 11 people…
Tiara gets a beach day!
Just so you know, Tiara has not been swimming in a pool in 3 years. She absolutely loves to swim, but if you bring her around a pool she will just jump in whether she has a suit on or not and despite the fact that she doesn’t know how to swim. After years…
Everyone just leave me alone…
I am having one of those days again and I just want everyone to get the hell out of my house and leave me alone. That would be heaven, so rude of me, but true. I dream of the day my house stays clean all day, no one complains they are bored, no one…
Why is everyone staring at us?
Why is everyone always staring at us? This is the question Trinity asks me every time we go out in public with Tiara. Trinity is 10 and at the age where she is noticing everything and everyone around her and is always embarrassed that people stare at us. I always tell her to ignore…
Tiara, soon to be a freshman….
I was just thinking about the end of the year activities for Trinity and realized that if Tiara was still attending school she would be graduating from 8th grade in a few weeks. How did that happen? Wow, I can’t believe that she is supposed to be going to high school in September. I…
Am I in trouble or what?
I mean if they passed out awards for giving the meanest looks, Tiara would win by a mile. She has always been very expressive with her face, which has enabled her to get her point across even when she couldn’t verbally communicate her wants, needs or dislikes. Even though she can now pretty much…
You have to take your medicine!
If you are a parent, I am sure you have had to administer the dreaded oral antibiotics that taste disgusting once or twice to your child. As you know, it is not fun or pretty. Sometimes it takes bribery and serious coercion to get the medicine down. Well, Tiara has to take 17 pills…