Not sure what I am in the mood to write about today. OK, enough wavering, I will tell you how Tiara slammed her thumb in the car door on Saturday morning after she let herself out of the front seat even though I kept telling her to wait for me as I put up the…
tiara & special needs
Are you good at “sizing” people up?
I am not sure about you, but I kinda have this sixth sense about people’s personality from the moment I meet them. This isn’t me “judging a book by its cover, but something a little deeper. I will go out on a limb and say 98% of the time my initial assessment of someone…
Not a great day, when you wake up and step in poop…
The past 24 hours haven’t been totally horrible but a series of events have me wishing the day would end quickly and we could start over tomorrow. Last night, Tabitha decided to go to the market and grab some avocados, since we we were making our favorite seared tuna and avocado dish, but we…
everything I didn’t tell you this week…
Have you ever noticed when you talk to someone almost everyday you always have so much to say and yet when you talk to someone you haven’t seen in forever you are sometimes stumped on how to carry the conversation? Well, that is how I feel about my readers. I write stuff to you everyday,…
Super weird side effect from a new seizure medication
Last month, Tiara’s neurologist prescribed her a new seizure medication that just came on the market, called Potiga. Even though Tiara is only having a few seizures each day, which is super fabulous for her, she is so sedated she can’t do much until the afternoon each day. Our plan was to add this…
A crayon fundraiser for Tiara!!!
This past Saturday morning Tiara had a big surprise. Avalon, a 6th grader at Newport Heights Elementary, my Alma mater, came over to our house with her Mom, Gina and brought with them boxes and boxes and boxes of crayons. WOW! Tiara was so excited she kept saying “thank you, thank you, your welcome,…
Have you ever screamed so hard, you wet your pants?
Well, I screamed so loud and so aggressively yesterday, I practically peed my pants. It so serves me right, as I was bragging just two days ago, about how I know how to clean up any crazy mess. Well, Tiara showed me. Last year when Tiara was in a coma, I used to…
I never drink shots, do you?
I am feeling on deaths door as a result of exhaustion and I am just praying that Tiara will sleep past 3am tomorrow morning. For the past week she has been waking up at 3am, including the night of my reunion. Oh wait, that night she woke up at 2am and then I had to…
Have you ever had to rescue someone at the beach?
So today a near miracle occurred. Lou had the day off, and we have a new caretaker who just started, provided by the Regional Center, who is really eager to learn but still very green. With that in mind, Lou took Trinity to beach volleyball camp, I took Tiara for a walk and then…
The backs of my legs are throbbing again!
I know this may sound really weird but whenever I get really stressed the back of my legs behind my knees, throb and pain. Has this ever happened to you? It started last year when Tiara was in the hospital for 3 months. At first I thought it was from sitting upright in a chair…