So once again Tiara wasn’t able to get extubated today. We finally got into her new room at 1am last night and I was woken up at 6am for x-rays to learn Tiara had spiked a temperature to 104 degrees. What? Now what is going on? The nurse cultured every line again but nothing…
tiara & special needs
Tiara update, Shingles, really?
Shingles? Yesterday the infectious disease doctor came by for her regular rounds while we were changing Tiara’s diaper. The nurse asked her to look at Tiara’s skin where she had the breakdown and asked her opinion of what she thought it was. The doctor said, “hummmm, it looks yeasty but looks more like shingles than…
Tiara update: And now Dialysis…..
I returned to the hospital this morning to find a sedated Tiara with a fever of 102.5. The nurse took samples of blood, urine and saliva searching for a cause of the new fever but nothing has revealed itself yet. As for the lungs, they look better but the kidneys have stopped cooperating. They…
Update on Tiara, Easter Sunday
It’s Easter Sunday and I just returned to the hospital after surprising my other girls with a early morning visit to watch them open their baskets. My mother in law came to stay with Tiara and I went home for 2 hours. It was so nice to hug my other big babies and eat breakfast…
Update on Tiara, Saturday March 30, 2013
Not much has changed since yesterday with Tiara. She had some more oxygenation issues this morning and they had to increase the settings on the bipap and decided to put in an ng tube for feeding. She had this same thing last time so it looks like she is as sick as in January. Her…
Update on Tiara, March 28, 2013 1:30 p.m.
Tiara was transferred to the ICU this morning around 6am after her oxygen repeatedly kept desatting. A ran out into the hall to get help and saw her resident charting at the computer. I asked her to hurry and help but once she got in the room she started checking the probe to see if…
We both have the flu again!
This is going to be a very quick update because I am super sick and feel miserable. Last night I felt achy all night and didn’t sleep and Tiara seemed to feel the same. I felt like I was jumping up to check on her every few minutes as a result I was a zombie…
Back in the hospital…
Unfortunately my prediction that Tiara was going to get worse came to fruition and she was admitted to Choc yesterday morning. I noticed she seemed a little worse but not as bad as in the past when I would rush her to the hospital. I kept thinking about the new development of the base of…
Things are going downhill fast!
Yesterday I decided to start a huge project and now I am shooting myself in the leg for starting such a large endeavor. I was out in the backyard attempting to make my neglected yard look decent by weeding the beds and the area between the cement. When we bought this house over 10 years…
The sleep study results are in, more bad news!
Many of you know Tiara completed a sleep study at CHOC several weeks ago which was long overdue. After talking with the technician I got the feeling the doctor was going to suggest/order Tiara use oxygen to sleep, but I figured I wouldn’t worry about it until he confirmed my suspicion. Friday afternoon we had…