Tuesday morning I woke up, looked at TT and decided she looked pretty healthy. Good coloring, happy disposition and breathing easily. I then woke Trinity up for school and saw that her allergy attack was resolved which meant she would go back to school, so I decided Tiara and I were ready to resume our…
tiara & special needs
Who was in my closet?
Monday morning I woke up so sore and achy, I had trouble moving. After lifting 4 bags of mulch in and out of the car and then dragging them around the garden my body was screaming for help. But that wasn’t the only reason my body was crying out for help. I think the biggest…
I stopped the madness!
I have to admit that my healthy eating and no sugar lifestyle have completely been lost over the past few weeks. I have a serious sugar addiction and when my life gets tough you can always tell by what I shove in my mouth. Anything with sugar in it! I have been on a really…
A few reflections from the last hospital visit…
I know I posted almost everyday while Tiara was in the hospital but there were lots of things that happened that I wasn’t able to convey during that time. First, I wrote about a resident in the ICU who was rather full of himself and on first impression neither he nor I were impressed with…
And now that we are home….
I have to say I am pretty shocked at how totally exhausted I am. The great thing about being home is that you get to see your family, eat good food and sleep in your own bed BUT now you don’t have any nurses to help you. As of last night I had already changed…
We are HOME!!!
We busted out of the hospital on Sunday afternoon after I pretended Tiara was eating, drinking and able to breath room air. I started planning our exit on Saturday night and forced Tiara to take part of her meds by mouth even though she would rather have them put down the NJ tube just so…
Sleepy Saturday …..
Well, late yesterday afternoon we were moved to the dungeon on the 2nd floor. We were greeted by few nurses who remember Tiara from January and they were very excited to see her again. The one nurse, Debbie, saw Tiara and said “ I’m trying, I’m trying”. Tiara is rather famous for that phrase and…
No more Dialysis!!
Another great day on the Tiara front. After a few large diapers the Renal team decided she didn’t need anymore dialysis. Yay, so happy! She has yet to eat but has been drinking everything in sight. They reduced her oxygen to 3 liters and put her on the nasal cannula which it the last step…
Still more improvement…
Today was another good day. She urinated enough that they decided to skip dialysis today and her creatinine was back in the normal range, which is a huge improvement. Hoping and praying they are going to move the dialysis machine out of her room tomorrow and we will never see it again! She was…
A good day!!!!
Today started out great because when I woke up I realized they had decreased the ventilator settings during the night and they were the lowest they have been and her oxygen levels were still good. I knew it was the right day to take her off the ventilator. I walked over to the bed…