It is Sunday night at 7:00 p.m. and I had pretty much given up the idea of writing a post for today. I really wanted to tell you how much fun Trin had at camp and what I surprised her with when she got home but I am so overwhelmed I can barely type. I…
tiara & special needs
It happened, we have accepted an offer!
As you all know I have been crazy for the past two weeks. Worrying, WORKING ON THE HOUSE, and totally stressing myself out about selling our house. Well, our prayers have been answered. We have accepted a great offer. Out of respect for all the parties involved I am not at liberty to disclose…
Tiara update, one step forward, half a step back…
Not much to report today but I didn’t want to leave you hanging without any information so here is the most recent update. Tiara has remained stable and there was a slight improvement in her x-ray this morning. Her kidneys continue to improve as well and since the kidney issue was deemed an “acute…
Tiara update, she is improving!
Good news, Tiara is finally improving. Her x-ray from this morning showed significant improvement in her lungs. At 6am this morning her kidneys started working better which in turn allowed them to get fluid out of her lungs thereby resulting in the great x-ray. The doctors still aren’t sure why her kidneys stopped…
They put her on a ventilator…
I am starting to hate my own posts because they are so depressing and I have a hard time believing this is all happening to my Tiara. Easter Sunday her oxygen levels continued to go up and down but mostly stayed low, even though she was in fairly good spirits. She was laughing…
In a panic
I woke up this morning at 4:45 am and was totally panicked. I was still tired but knew I had to get up and get some stuff done or I would act like a crazy person all day. I needed to start marking stuff off my list so I wouldn’t feel so worried. Sorry, but…
From the ICU to the dungeon…
Because Tiara is improving so much the doctors wanted to move her out of the ICU and put her on the “floor” today. For those of you who aren’t frequent fliers of the hospitals, yes that is what the nurses actually call kids like TT, “the floor” doesn’t mean literally on the germ ridden ground…
And now 2nd degree burns…
Saturday night was Lou’s work party and I spent the day getting everything in the house perfect and my outfit ready since I was going to be spending the night in Ontario. Whenever I leave the house overnight I am rather neurotic about making sure all laundry is done, everything is in it’s place and…
Thank Gosh it’s Monday!
Seriously, this Thanksgiving weekend felt like it was a month long with Saturday and Sunday lasting 3 of the 4 weeks. We just got home from our normal Sunday lunch at Fashion Island and I barely survived the car ride home. Just before we left the mall, Tiara pushed back her wheelchair and ran over…
I had quite the scare today!
Today was one of those days where everything didn’t go exactly wrong, but just different than I planned. Tiara and I usually walk with a friend on Wednesdays but this morning I had an early auction meeting for the school at 8:15am. My plan was to do Tiara’s medicine a little early and bring…