Last week I was driving to Trinity’s school volleyball game which was being played at a Catholic school in Orange, when I saw it. As I was on the 22 freeway heading towards the school, I saw the big red building coming up on my left. A place I used to spend a lot of…
tiara & special needs
It’s been 3 months since she passed away.
I have been really working on trying to get us on a budget and get out of debt, now that I have time to focus on issues like money. Louie and I just started the Dave Ramsey program and I was working on our budget this morning when I started feeling really heavy in my…
My Earthly Journey with Tiara has ended, she is now in heaven…
My middle baby, Tiara Jeanne Goff passed away from complications related to Tuberous Sclerosis at home on January 15, 2015, surrounded by her family. She was 16 years old. We placed her on hospice December 31, 2014 but I made it sound like a positive move to those who follow me on Facebook. I was…
Sometimes there are no good options….
Today I cried in front of Tiara’s neurologist as I described our life and Tiara’s current state. Tiara is completely drugged most of the day, but not a good drugged. She is drowsy, irritated and frustrated and can’t stop eating. She has gained 30 pounds since April and crawls most of the time because getting…
I was meant to do this…
I have so many things to update you on but let’s start with what’s on my mind this exact minute. It’s the book I am currently reading, “Carry on, Warrior the power of embracing your messy beautiful life” by Glennon Melton. I received this book as a gift for Mother’s Day from one of my…
The IEP, the wind and more….
If you are a subscriber to my blog, I hope this arrived in your email inbox today. If not, clearly I have another issue to fix. I posted on Monday and Tuesday and apparently Mail Chimp claims they sent out my feed but I never received the email, nor did anyone else as far as…
Tiara’s got style!
Tuesday night my Dad, Lou, TT and I were all sitting around talking about the difference in my mom and I’s clothing style. Totally weird topic and I don’t remember how it came up, but yes my Dad and were talking clothes, when Tiara suddenly jumped up from the couch and ran into her room. …
Two year blog anniversary
My life has been hectic lately and I just realized it has been 2 years this week since I started writing my blog. Two years and over 500 posts. Wow, I can’t believe I have made it this long. I also realized I haven’t started organizing our taxes and I always turn them into our…
Is today Valentine’s day?
I have turned into a full bah humbug this Valentine’s Day. Every year I make homemade cards for my family and bake a yellow heart shaped cake with chocolate frosting, but this year, I’ve got nothing. Aside from the fact that I am exhausted and worried about Tiara, I just have no desire to take…
Why do I do this?
Every morning I find myself doing the exact same disgusting thing and every time I do it, I ask myself, “Why do you keep doing this, Tiffani?” So what dumb thing do I do every morning and always regret? Well, every morning Tiara wakes up with a really full diaper. I try to change it…