To be honest I have been avoiding this sleep study for 5 years. Yes, for 5 years doctors have recommended it and because Tiara’s seizures were always the priority this outpatient study continued to be put on the back burner. After her last hospital stay which required she go home on oxygen for sleep I…
procedures
Tiara is getting better, yet again!
Good news! Tiara is off the bipap and is on a regular oxygen mask. She thinks she is all better so my whole purpose in life has been to stop her from tearing off her leads, pulse ox, and oxygen mask all day! The nurse just asked me if I felt like I was playing…
Why does everything have to be so hard?
As I have mentioned, my husband recently changed jobs. With a new job comes new insurance. For most families I am sure that is stressful but for our family it can be traumatic. Years ago when Louie was interviewing for new jobs, I used to beg him to ask what kind of insurance they…
I woke up every hour…..
I hate when I have something super important scheduled for the early morning because you can never the sleep the night before. I usually set 2 alarms but invariably I wake up every hour look at the clock and do a mental count down how many hours of sleep I have left. Today I…