So, I had my post almost finished around 1pm today and then somehow it magically disappeared and was deleted with a quick key stroke I couldn’t repeat if my life depended on it. I started to rewrite it later in the day but then all hell broke loose and I resigned myself to the…
kids
Its all about Trinity…
Last night after dinner, Trinity was a bundle of nerves worrying about the Monster Mile today. As we were watching the Olympics, she just kept staring at Lou and I with this worried expression. So I asked her, “what is the worst thing that could happen tomorrow? ” I could die!” “Ok, the lifeguards are…
what keeps you awake at night?
My thoughts of Tabitha and Trinity having an asthma attack and dying are a pretty constant worry for me, which tend to keep me up in the middle of the night, if I am not already up with Tiara. Last night on the way home from a family birthday celebration Trinity started in on her…
Are you a work widow?
The other day my friend offered to help me set up for the Tuberous Sclerosis picnic in August because I commented to her, “Lou will probably be working and not able to attend the picnic this year”. She said “Oh, I know what it is like to be a work widow, I will help!” …
Try not to laugh…
As I have mentioned or rather I think I have mentioned, Tiara has the worst table manners in the history of mankind, including cavemen. She has never been great in the table manners department but ever since her surgery last year her manners are non existent. We are not sure whether it is because she…
Something funny about me, you probably don’t know…
If you are a regular reader, you know by now, once I get hooked on something I sometimes go a little overboard. Well, what you probably don’t know about me is I used to be a “bird lady”. Yes, at one point we had 13 parakeets and I let them fly around the…
I only had to do the Heimlich once, but we survived!
So, as most of you know, I took Tiara to the fair yesterday. It was super humid and hot but I decided to forge ahead and follow through with my plan. At 3:30 Trinity and I loaded up the car, with 15 cans of food because every person who brought in 5 cans before…
Do we dare try again?
It is fair time again, and yes my family loves the fair. Tabitha and Trinity actually ride all the frightening crazy rides designed for adrenaline junkies. Apparently my girls get this from Louie because I feel sick just watching the rides and can’t be persuaded to ride anything at the fair. I am…
Re-entry is always hard…
So I am forgoing my normal Monday post , My Journey with Tiara, as I am way too emotionally and physically tired, to rehash Tiara’s past medical history. In addition, that post always takes me several hours to write and I don’t have several hours to spare today as I am having 11 people…
I hate your face!
I bet you have never heard the expression, “I hate your face,” until today. Well in our household it is a very common expletive that Tiara yells to different people throughout the day at least 20 times, starting first thing in the morning. When we first heard it we couldn’t help but laugh because…