Good news! Tiara is off the bipap and is on a regular oxygen mask. She thinks she is all better so my whole purpose in life has been to stop her from tearing off her leads, pulse ox, and oxygen mask all day! The nurse just asked me if I felt like I was playing…
hospital stays
Memorable Monday’s, my new series….Tabitha’s birth
I have been trying to come up with a good idea for my Monday posts since I concluded “My Journey with Tiara,” and Tabitha finally came up with a great idea for me on Friday night. “How about Memorable Monday’s Mom? “Love it!” Memorable Monday’s will mostly be funny memories from my life, of course…
I tried to take the day off…
I tried really hard not to write this post because I am functioning on 3 hours of sleep and that is NOT an exaggeration, but of course I couldn’t help myself. In the past 14 hours I have been in the emergency room, to UCLA for a check up and at another doctor’s office for…
Pulled a doctor maneuver and now I am stressing I screwed up!
Not sure what I am in the mood to write about today. OK, enough wavering, I will tell you how Tiara slammed her thumb in the car door on Saturday morning after she let herself out of the front seat even though I kept telling her to wait for me as I put up the…
We got the stomach flu…..
Wednesday night/ Thursday morning Tiara woke up at 1am again. She kept making her usual demands, ipod, movie, crayons, pictures but then she started coughing. Oh crap, I ran to the cabinet and grabbed a towel. When she coughs more than 2 times in a row it means she is going to vomit. …
You have to take your medicine!
If you are a parent, I am sure you have had to administer the dreaded oral antibiotics that taste disgusting once or twice to your child. As you know, it is not fun or pretty. Sometimes it takes bribery and serious coercion to get the medicine down. Well, Tiara has to take 17 pills…
Last year at this time….
As I have mentioned in previous blogs, I don’t usually dwell on the past. But because I have been trying to raise awareness for Tuberous Sclerosis this month, I keep thinking about this same time last year. It was during this same week after Mother’s Day that Tiara was supposed to be recovering from…
Team Tiara, stepping forward to find a cure…
May is National Tuberous Sclerosis Awareness Month. In an attempt to help find a cure for TSC and bring awareness to Tuberous Sclerosis our family has formed “Team Tiara” for the upcoming TSC’s Step Forward to Find a Cure walk in Long Beach on May 19, 2012. It is estimated that every…
I woke up every hour…..
I hate when I have something super important scheduled for the early morning because you can never the sleep the night before. I usually set 2 alarms but invariably I wake up every hour look at the clock and do a mental count down how many hours of sleep I have left. Today I…