It’s Easter Sunday and I just returned to the hospital after surprising my other girls with a early morning visit to watch them open their baskets. My mother in law came to stay with Tiara and I went home for 2 hours. It was so nice to hug my other big babies and eat breakfast…
hospital stays
Update on Tiara, Saturday March 30, 2013
Not much has changed since yesterday with Tiara. She had some more oxygenation issues this morning and they had to increase the settings on the bipap and decided to put in an ng tube for feeding. She had this same thing last time so it looks like she is as sick as in January. Her…
Update on Tiara, March 28, 2013 1:30 p.m.
Tiara was transferred to the ICU this morning around 6am after her oxygen repeatedly kept desatting. A ran out into the hall to get help and saw her resident charting at the computer. I asked her to hurry and help but once she got in the room she started checking the probe to see if…
We both have the flu again!
This is going to be a very quick update because I am super sick and feel miserable. Last night I felt achy all night and didn’t sleep and Tiara seemed to feel the same. I felt like I was jumping up to check on her every few minutes as a result I was a zombie…
Back in the hospital…
Unfortunately my prediction that Tiara was going to get worse came to fruition and she was admitted to Choc yesterday morning. I noticed she seemed a little worse but not as bad as in the past when I would rush her to the hospital. I kept thinking about the new development of the base of…
The sleep study results are in, more bad news!
Many of you know Tiara completed a sleep study at CHOC several weeks ago which was long overdue. After talking with the technician I got the feeling the doctor was going to suggest/order Tiara use oxygen to sleep, but I figured I wouldn’t worry about it until he confirmed my suspicion. Friday afternoon we had…
We survived the sleep study!
To be honest I have been avoiding this sleep study for 5 years. Yes, for 5 years doctors have recommended it and because Tiara’s seizures were always the priority this outpatient study continued to be put on the back burner. After her last hospital stay which required she go home on oxygen for sleep I…
Memorable Monday: jet lag lands me in the hospital
I was thinking about our vacation to New York, jet lag and travel in general because everyone in our town has been away for ski week. I remembered an incident that happened to me as a teenager, which was super scary and traumatic to my whole family and thought I would share. This is the…
Welcome to the Goff House…
I can’t tell you how great it feels to be home with Tiara. We finally got released from the hospital on Saturday at 7:30 p.m. and when we drove up to the house, I could see from the driveway that something was posted on our front door. “What the heck is that?” I thought to…
From the ICU to the dungeon…
Because Tiara is improving so much the doctors wanted to move her out of the ICU and put her on the “floor” today. For those of you who aren’t frequent fliers of the hospitals, yes that is what the nurses actually call kids like TT, “the floor” doesn’t mean literally on the germ ridden ground…