As the whole world is freaking out about being isolated at home, I have returned to a place I once knew well. Isolation, being stuck at home, living in a hospital, not being able to attend functions because your child and her behaviors aren’t welcome or not being able to leave the house because you…
gratitude
My life changed forever, 20 years ago today.
Somehow 20 days have gone by and I haven’t posted. 20 days, 20 years, time moves so quickly and we can never get it back. 20 years ago this weekend Tiara was diagnosed with Tuberous Sclerosis. I remember sitting in the blue vinyl chair at CHOC watching the eeg tech perform the first of many…