Well, I mentioned last week I was in a funk and now I am going on week 2 and the fog has not lifted. I wake up and think, hum, what am I doing today? Oh right, the same thing I did yesterday and the day before that and the day before that. …
developmental delay
Team Tiara, stepping forward to find a cure…
May is National Tuberous Sclerosis Awareness Month. In an attempt to help find a cure for TSC and bring awareness to Tuberous Sclerosis our family has formed “Team Tiara” for the upcoming TSC’s Step Forward to Find a Cure walk in Long Beach on May 19, 2012. It is estimated that every…
Someone please tell me spring break is over!
Spring break, Summer break, Christmas vacation, ski week, all wonderful times for everyone else, but a nightmare for me. A break, means a change in routine and that means trouble in the Goff house. While everyone else in Newport has gone to the desert, we have remained at home, like always. This is not a…
Who burps really loud in public?
Well, Tiara does and she thinks it is really funny. If it weren’t so embarrassing and rude to the other people around us I would think it was really funny too. OK, I am lying, it is really funny, but I try not to laugh when she burps in public because I don’t want to…
I woke up every hour…..
I hate when I have something super important scheduled for the early morning because you can never the sleep the night before. I usually set 2 alarms but invariably I wake up every hour look at the clock and do a mental count down how many hours of sleep I have left. Today I…
another one of those days….
I have been writing this blog for one month now. When I started posting last month, I had no idea my journey with Tiara was heading for this direction. I sensed her agitation was increasing, I saw more daily seizures, I felt the increased pinching and hair pulling but I was hopeful that our lives…
How tired do I look?
Well, I feel super tired and judging by the red squiggly lines in my eyes, I look how I feel. Looks like I have been drinking wine already today, but oh, it is only 9am. I never drink until after 5pm, but I already look like crap and the day has hardly started for normal…