I know I have mentioned on several occasions that keeping my face free of scratches is big on my list of priorities. Vain, yes I am. I put a lot of effort into caring for my skin and the last thing I need is a bunch of scars on my face.
The rest of my body is scarred from Tiara but I have been able to save my face for the most part, that is until yesterday.
Last night I was finally sitting down for the evening to watch television at about 8:45. I had already completed the medicine, gotten Tiara ready for bed and I plopped into my favorite corner spot of the couch. I had taken out my contacts so I was wearing my reading glasses when all of the sudden without any warning Tiara swiped at my face. I have no idea why and I was totally unprepared, I never saw it coming. She was sitting next to me half drugged and almost asleep and next thing I knew her hand flew at my face. She knocked off my glasses and they fell to the floor. I was totally shocked but it was over as quickly as it started.
I didn’t even think she had gotten my forehead until I got up to get some water. As I passed the mirror hanging over the fireplace I saw that I had a big bloody scratch in the middle of my forehead. Ohhh, I was so mad! Then Tabitha came into the room and saw my face. I pointed at my forehead and she said “I can see it Mom.” She had already helped me with Tiara a bunch that night but after getting her own injuries she was done helping for the night.
Of course Lou was working because it was the last day of the month. He actually didn’t get home until 1am. I hate when he gets home that late because I constantly wake up to see if he has made it home yet. Once he gets home I wake up every half hour or so to see if he has gone to bed. He doesn’t sleep enough, so I usually force him to bed by 2am if he has to work early in the morning. Yep, he can function on 4 hours of sleep and then work a 12 hour day at his job.
Got off track……
Anyways I put a bunch of Neosporin on my face and am hoping it won’t scar. Guess I could always go back to wearing bangs?
And no Tiara isn’t doing better today. She spent the first 30 minutes of her morning telling Lou “I hate you” and kept throwing crayons at his face. He finally looked at me and said: ” Tiffani we have to drug or her something. Really we can’t handle this much longer.”
“I know, it’s getting scary!” The good news is she has an appointment at UCLA on Thursday with her neuro-psychiatrist and I am praying she will be able to help.
Hope everyone has a great Wednesday!
xoxo tiffani
Aww, Tiffany I am so sorry she got your face and just hoping you can get some answers on Thursday. I can only imagine how frustrating this all must be and seriously when I read about all the rougher moments, I am always floored at home easy you make it sound, when really I know this has got to be so hard and difficult. Thinking of you and just do very much hope you get some concrete answers now. xoxo!!
Use Polysporin (not Neosporin) is what my dermatolgist says. Don’t let it scab. Keep the Ointment on it at all times. Then in a few weks, if there’s redness, us a 1% hydrocortisone cream to take away the redness. Sorry this happend in the first place. You’re still beautiful! I hope you get answers to the sudden outburts lately. Hugs from Texas, Stacie xo
Ohhh thanks for the help Stacie! I will get the polysporin at Target today.
I’m really sorry she got your face. I truly understand how important it is to keep one thing for yourself and hold it sacred. I pray Tiara is able to get the help she needs. I pray the stress on your family is lessened. Enjoy your new job and day.
Blessings~
Alethea
Tiffani: I recently found your page and blogs and have been reading them every single day since I found them. Our daughter has TSC, she is 12 years old. She is not as severely affected as Tiara, but she had her own troubles when she was born. She had brain surgery at 8 weeks old, and now suffers from left side weakness, like a stroke victim, because of the brain surgery. She was seizure free for 9 years until that stupid puberty hit. She has been seizure free now for 3 years since then. You are truly an inspiration to all who are affected by this horrible disease and I praise you for your strength and attitude. I cannot wait every day to read your blog. Thank you for sharing your journey with all of us. –Mary-Ellen from Agawam, MA
Thanks Mary-Ellen. Boy can I relate to that puberty , it really is a killer with the seizure kids. xoxo tiffani