• Skip to primary navigation
  • Skip to main content
  • Skip to primary sidebar
  • Skip to footer
  • Secondary Navigation Social Media Icons

    • Amazon
    • Email
    • Facebook
    • Goodreads
    • Instagram
    • Pinterest
tiffani goff

tiffani goff

tiffani goff at home

  • Loving Tiara photo album
  • Reviews of Loving Tiara
  • CONTACT ME
  • blog posts
  • my custom party decor

“Loving Tiara is the kind of memoir that both breaks your heart and fills it up with hope and inspiration. Tiffani Goff is a fierce and faithful mother who is determined to give her daughter a good life. Her story shows us how a family can overcome extraordinary obstacles, and how a mom can be a superhero.” Candi Sary, author of Black Crow White Lie

“Beautiful, raw, authentic, tragic, and an incredibly precious read…”

“This memoir, when once finished, there is no looking back. After having the privilege of being part of this family’s day-to-day life, I wanted my experience to be never-ending. This story rapidly became essential food for my soul, allowing me to savor every “bite” with each page. Tiara’s life is the thread of the memoir, however never do the others become blurred. This is truth, without excuses, explanations, or regrets. What a distinguished way to experience life on life’s terms. Thank you, Tiffani! I have never been able to have children, however, those three beautiful girls were mine as long as the story went on. Give yourself the gift of this read, it will be with you for a very long time.” Verified Amazon Customer, 12/10/2020

” Five stars isn’t enough!”

” Wow, definitely gives perspective to those caring for special needs children. Tiffani is the definition of sacrifice, dedication, and unconditional love while taking care of her daughter, Tiara. Thank you tiffani for sharing Tiara with us.” Verified Amazon Customer 12/30/2020

Prologue from Loving Tiara:

I can never find the quiet. I know that someday this will end and I will have plenty of quiet time, but right now I can’t imagine that being my reality. Someone always needs me.

Most days I just hope to survive until she falls asleep. I constantly ask God, the universe, whoever can hear my thoughts, to give me the strength to carry on. It’s the mantra that plays in my head all day long until she falls asleep at night, and then I say, “Thank you, thank you, thank you” with a huge sigh of relief. I survived another day.

I always wonder how I find the strength to keep going. Everyone in my family and inner circle are shocked that I keep doing what I’m doing. Some have begged me to stop, find another way, or have her placed outside the home, for they fear she will eventually kill me. I refuse to listen to them or entertain their suggestions, because I know in my heart, being her caretaker won’t last forever. I’m meant to be her caretaker for her entire life, and no one can stop me from doing otherwise.

I often wonder how I can love, more than life itself, the person who abuses me daily. Why do I crave her kisses, her bear hugs, and her contagious smiles, when I know she will suddenly lash out at me without any warning?

I would rather die taking care of her than give up on her. I am her mother, her voice, her strength her advocate, and her biggest fan. I am also a wife and a mother to my two other beautiful girls. They all need me to be strong, so they can pretend our lives are “normal.” Even when I feel like dying inside, I carry on, because that is who I am. This is the story of loving Tiara.

All versions of Loving Tiara are available for purchase on Amazon:

paperback

ebook

audiobook

Loving Tiara is free with your Kindle Unlimited subscription.

You can also Google it and buy it anywhere online books are sold.

Affiliate links are included on this page.

tiffani goff

A big change since Tiara has been home…

May. 08, 2013

Some of you may not realize that Tiara hasn’t started walking on her own since she has been home from the last hospital visit.  As a result I push her from room to room in the wheelchair but she spends most of her time in the bedroom.  I feed her breakfast in bed, do her…

Read More
tiffani goff at home

A special Tuberous Sclerosis encounter in the hospital

May. 07, 2013

I have been wanting to share this story with you and since today I am so  exhausted I am having a hard time thinking, today is the day you get to hear about my recent encounter with another Tuberous Sclerosis family. While in the hospital during Tiara’s last visit, I received an email message sent…

Read More
tiffani goff at home

Where did the box go?

May. 06, 2013

It is 3am on Sunday morning and I can’t get back to sleep.  Tiara just tore off the probe on her toe so the pulse ox machine was beeping like crazy and woke me up.  Once I put the band aid thing back on her toe, I taped over and over it so she wouldn’t…

Read More
tiffani goff at home

Do you sign your kids up for summer day camps?

May. 03, 2013

What happened to the days when kids got out for summer and just played in the neighborhood all day?  When I was a child I was always on the swim team which meant I swam for an hour a day and then the rest of the day I was free except for on meet days. …

Read More
tiffani goff at home

A day of pictures….

May. 02, 2013

Today I am going to share some photos as requested by some of my readers.  Pictures of my roses, the finished patio and from Trinity’s birthday party.  Before I start sharing the photos I just want to give you a small update of Tiara since she has been home.  She slept great and was thrilled…

Read More
tiffani goff at home

We finally got home, once again!

May. 01, 2013

Just a quick update.  We finally made it home yesterday at 4:00 p.m. after an issue with the CHOC pharmacy not having Tiara’s antibiotic to take home with us.  Of course the dosage she needed was back ordered but Tiara and I were getting super antsy to get out of there so I asked the…

Read More

Yes, she failed the swallow study!

Apr. 30, 2013

Tiara had her swallow test yesterday and just as I expected she failed!  I knew she was aspirating but I wasn’t sure to what extent. Apparently the moment she took a sip of the barium with a straw they watched it pass over into her lungs. Clear cut aspiration. She coughed but it was delayed,…

Read More
Tiffani goff at home

Home is where the heart is…

Apr. 29, 2013

Happy Monday everyone!  Tiara is still here at Choc but she seems to be feeling better.  We realized she was allergic to the antibiotic that was treating her 3 infections because her mouth broke out in cold sores.  I knew it might happen and was on the look out for any allergic signs because it…

Read More

still here, but NOT in the ICU…

Apr. 27, 2013

We are still here but the good news is that she has been well enough to remain on the floor and hasn’t been transferred to the ICU .   We found out yesterday that she has a urinary tract infection which explains the pee issue, which is really great news that it wasn’t a kidney…

Read More

Sadly, she is back in the hospital

Apr. 25, 2013

I’ll make this quick as I haven’t slept much. Yesterday I took Tiara to the emergency room because she hadn’t urinated in 15 hours.  She looked really puffy, was shaky and I was very concerned after she started vomiting.  I am pretty sure the vomiting was a seizure because her eyes were darting side to…

Read More
  • « Go to Previous Page
  • Page 1
  • Interim pages omitted …
  • Page 26
  • Page 27
  • Page 28
  • Page 29
  • Page 30
  • Interim pages omitted …
  • Page 57
  • Go to Next Page »

Primary Sidebar

Recent Interview

Who is tiffani?

Mom, Wife, author of Loving Tiara, retired home stager, and chronic volunteer. I laugh when I'm happy, nervous, or stressed, so basically, I'm always laughing, and you can hear me from down the block if the windows are open. I love to swear even though it isn't ladylike, and I'm brutally honest, but in a super nice way, or so I think? I tend to roll my eyes, and apparently, my face is very expressive because even when I don't open my mouth, everyone knows what I'm thinking. My hubby and I are homebodies; I'm obsessed with always doing the "right thing " and taking care of my skin. I love learning, am always trying to evolve as a human being, and am a bit of a perfectionist. Let's have some fun! xoxo tiffani
Read More…

Now available on Amazon…

recent comments

  • Vivian on I’m in DIY heaven…
  • Karen on I’m in DIY heaven…
  • Judy Lisberger on I’m in DIY heaven…
  • Mara on I’m in DIY heaven…
  • tiffani goff on Our prayers have been answered…

Categories

  • about me
  • appetizers
  • blogging
  • breads
  • childhood memories
  • daily life with tiara
  • easy dinners
  • for the home
  • for your face
  • for your health
  • giveaway
  • hair color adventure
  • healthy
  • life after tiara
  • meet the author
  • memorable monday's
  • my life after tiara
  • my thoughts about life
  • press
  • recipes
  • salads
  • smoothies
  • sponsor
  • sponsored posts
  • sponsors
  • stuff I love
  • sweets
  • tiara & special needs
  • Tips and Tricks
  • Tuberous Sclerosis Complex
  • Uncategorized
  • video blogs (vlog)
  • what would tiffani do?
  • Amazon
  • Facebook
  • Goodreads
  • Instagram
  • Pinterest

Footer

Instagram

Follow me…

  • Email
  • Facebook
  • Goodreads
  • Instagram
  • Pinterest

Copyright © 2025 · Your Site Name

Lexi Theme by Code + Coconut