I have turned into a full bah humbug this Valentine’s Day. Every year I make homemade cards for my family and bake a yellow heart shaped cake with chocolate frosting, but this year, I’ve got nothing.
Aside from the fact that I am exhausted and worried about Tiara, I just have no desire to take my free time and spend money on expensive cards and candy. Since I have no energy to make my own cards what is the point? See what a bad attitude I have this year?
Yesterday morning I made this announcement to the family, “Ok, tomorrow is Valentine’s Day and I haven’t bought any of you a card or a present so please don’t be disappointed when you wake up tomorrow and I have done nothing.” Big smile. “Love you!’
Lou: “Sounds good to me, I haven’t bought anyone anything either, and I am working bell to bell today, so I won’t ever have time to leave the dealership to pick up anything”
Tabitha sighs, Tiara doesn’t know what I am talking about and Trinity could care less since she gets an ice cream sundae party at school.
Are you thinking, “get on with the Valentine’s talk Tiffani and fill us in on Tiara?”
I think this because each time I skip a day of posting my phone gets blown up with worried people wondering how she is. So how is she? The exact same.
Still puffy, still holding her urine, still forcing her to drink, having lots of staring off seizures and still doesn’t have the strength to walk on her own or get up from a seated position by herself. She has seen her pediatrician twice this week, I talk to him on the phone everyday and I almost have an appointment with nephrology. How can you almost have an appointment?
Well they know I want an appointment, her doctor has sent them the referral, they have received part of her medical records but until they have everything in their hot little hands they refuse to schedule. They should have everything by today, so I am hopeful we will get an appointment soon.
In the mean time I am just watching her close. The humor in this whole situation…. You should see me get her off the ground by myself. Now that is funny. She can get to her knees, but then I have to pull her up the rest of the way. Since she now outweighs me by 80 pounds, I have to take a sumo wrestler stance and end up grunting and almost falling over backwards as I finally get her up. She usually ends up with her shirt up by her ears and I am out of breath as if I ran around the block. My shoulders are sore and Lou keeps telling me to bulk up on the protein since I am lifting so much. Really? He even suggested some weird weight lifters formula I should try, NOT.
Anyways, it really is funny watching us try and navigate the day without a 3rd person. Once her caretaker arrives all is good but that is only 20 hours a week with leaves me with 148 hours to navigate by myself.
Hope each and every one of you has a great Valentine’s Day!
xoxo tiffani
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Tiffani, I seriously felt so bad for you reading that last part and sounds crazy, but I wish I lived closer and would try to help you if I could. That said I seriously do hope you get in at the doctors and they can do something or at least give you an idea of what is going on. I have you in my thoughts and prayers still. Happy Valentine’s Day (I know it sound cheesy, but still had to say it). xoxo!!
Happy Valentines Day! It is always good to hear from you.
I hope you get apptmnt. soon. As for the lifting hang in there.
I know it is very hard, but what we do for our children are nothing but blessings one day!
Thinking & praying for you all.
Happy V day bf! Wish I was there to bring you over a home made valentine and help you pick up TT!
Thanks BF, I wish you were here too! xoxo
I had to chuckle when I read your post. I too have a daughter that I have had to help and I have laughed at myself later thinking how funny we must of looked. From one loving mother to another, have a beautiful day. I do hope and pray that things improve for you and your daughter. 🙂
Hello and love to you no matter what day it is!!! I am sorry if this is uninformed or incomplete based on previous posts, but just going off this post, is heading to the ER to get attention and speed the ‘make an appointment’ thing along out of the question? If these symptoms are new, and I’m assuming they are based on the tone of your post, perhaps a kick in the pants from the ER is needed to get the bureaucracy moving! Scheduling makes me crazy often and I can’t stand being in an acute situation and someone tells me they are waiting on paperwork. Grrrrr. got get em Momma.