I tried really hard not to write this post because I am functioning on 3 hours of sleep and that is NOT an exaggeration, but of course I couldn’t help myself. In the past 14 hours I have been in the emergency room, to UCLA for a check up and at another doctor’s office for a sick visit. It took all my strength to keep my eyes open on the drive home from UCLA but now we are safely at home. My mother in law offered to let me nap for an hour but I am thinking if I close my eyes for even a second I won’t wake up until tomorrow and that would be a serious problem. Lou is still at work and I have no one to watch Tiara. I think I forgot to mention to you last week that the new caretaker we got for 5 days, whom we all loved including Tiara, never returned. No explanation, no call, just never came back. Now, what are you thinking that says about us? Guessing it isn’t the best job in the world.
Back to UCLA. Thank goodness Tiara was pretty good at her appointment today but actually I was too tired to care. I let her sing in the waiting room at the top of her lungs as I sat and zoned off in space. This really sweet couple was waiting to see a geneticist and I am thinking after spending 30 minutes in that waiting room with us and all the other disabled kids, they may be rethinking the whole kid thing. Seriously, the geneticist should have an office off site from the clinic.
How funny does Tiara’s hair look in this picture? She found a brush in the car on the way to UCLA and thought it was a good idea to brush her Afro curls. She was really digging brushing her hair and I couldn’t stop laughing, so I just let her do it. Luckily, I found a rubber band in my purse to pull it back before we got into the waiting room. If the singing didn’t scare off the other patients, the combo of her hair and singing would certainly have cleared the room. I think it is apparent, I am delirious at this point so I am going to stop before I get more wacko. The computer screen is blurring and swaying side to side. I guess I better go figure out what to make for dinner and determine how I am going to stay awake until Lou gets home.
The good news is that everyone in my family is on the mend and should be fine by Thanksgiving.
xoxo tiffani
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I’m actually thinking a geneticist amidst the trenches is the perfect spot, right? At least you would know what you’re getting into and can make choices that serve your family. I don’t appreciate when people downplay something so as not to “scare me”. I say please scare me away and if I’m still on board in the end I know it’s right for me, otherwise I can bow out gracefully while I still can.
I guess you are right but the clinic at UCLA is really a scary place, even for those of us that spend time there often.
I hope you got some sleep my friend!
Thanks Leslie, Happy Thanksgiving!