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tiffani goff

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tiffani goff at home

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I miss it there…

Nov. 11, 2015

Tiffani goff at home

Last week I was driving to Trinity’s school volleyball game which was being played at a Catholic school in Orange, when I saw it.  As I was on the 22 freeway heading towards the school, I saw the big red building coming up on my left.  A place I used to spend a lot of time.  A home away from home.  Children’s Hospital of Orange, CHOC.

Tt playing the guitar she received for Christmas during her last hospital stay.
Tt playing the guitar she received for Christmas during her last hospital stay.

It wasn’t the first time I have driven by CHOC since TT passed away, but it was the first time I acknowledged that I really missed it.  I thought to myself “How could you miss a hospital?”  I guess because it was the place I took Tiara to get her well so I could once again bring her back home.  I always knew that once she was there, she would get the help she needed. 

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The hospital staff became my friends and suddenly they were just gone from my life.  I knew the lady who worked the early shift in the Starbucks and she knew my order by memory.  The security guards recognized me and every time Tiara was admitted we were always greeted by a familiar face in the Emergency Room.

tiffani goff at home
TT sleeping at her home away from home.

I knew which PICU nurse or transport nurse would be able to get a new IV on Tiara.  I knew the Respiratory therapists.  I knew who was best dealing with the ventilator, who cut the prefect size strips to protect her skin while on Bipap, who would put the extra effort into loosening her secretions, who believed in adding saline for suction and who tried to avoid putting her in the vest because it was too much work.

tiffani goff at home

I had my favorite doctors, nurses and maintenance workers.  The doctors that always listened to me.  The ones that would compromise with me when we had a difference of opinion and the ones who irritated me because we had to do it their way first and once it didn’t work out, THEN, they tried my suggestion.  My favorite nurses, male and female.  The nurse that had a melt down after we had to change a million (exaggeration) diahrrea diapers in one day.  As soon as we would clean Tiara up, it would happen again.  I don’t mean a little clean up, I mean bed sheets, blankets, legs, gown, everything.  She literally got tears in her eyes and then we started hysterically laughing.  Every visit after that we would reminisce about that time “she lost it.”

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They became my friends. They knew so much about Tiara and our family and I learned so much about each of them.  I knew who loved to ride their bike, who was obsessed with dogs, what Netflix series they were currently watching and was was vegan.  Who was divorced, who was a single Mom, who was going onto to become a Physician’s Assistant, and who hated the night shift.  I knew which maintenance worker would clean Tiara’s room the best and who was the quietest when they took out the trash. 

tiffani goff at home
Tiara quietly coloring

Tiffani goff at home

They are my past but I grew to love so many of them.  I miss them.  It’s like a club I once belonged to and am no longer a member.  I have been kicked out because my big, sassy girl with the perma smile is now safe and healthy in Heaven.

tiffani goff at home
getting her hair washed by one of her favorite nurses.

xoxo tiffani

tiffani goff at home

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Category: my life after tiara Tags: hospital stays, tiara & special needs, Tiffani

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Comments

  1. Janine Huldie says

    November 11, 2015 at 5:22 am

    Aw, I can only imagine how you must feel passing the hospital where Tiara stayed at during her bouts with illness. I am thinking about you today and sending some extra hugs after reading this, too xoxo 😉

  2. Lisa Cummings says

    November 11, 2015 at 8:25 am

    It goes against the grain of nature to bury our children and i think the “miss you” part is the worse. What i derive from this particular blog piece is just what a wonderful loving Mother you were to TT and still are to the other girls. You will always be
    part of the club because you left a piece of your heart where ever you went. TT will never be forgotten because of “you.” Love you.~Lisa

  3. Betsey Riedl says

    November 11, 2015 at 9:40 am

    I was thinking about you and your family last week, and wondering how you are doing. Hang in there, take each day as it comes, and remember the love you and your girl shared.

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Who is tiffani?

Mom, Wife, author of Loving Tiara, retired home stager, and chronic volunteer. I laugh when I'm happy, nervous, or stressed, so basically, I'm always laughing, and you can hear me from down the block if the windows are open. I love to swear even though it isn't ladylike, and I'm brutally honest, but in a super nice way, or so I think? I tend to roll my eyes, and apparently, my face is very expressive because even when I don't open my mouth, everyone knows what I'm thinking. My hubby and I are homebodies; I'm obsessed with always doing the "right thing " and taking care of my skin. I love learning, am always trying to evolve as a human being, and am a bit of a perfectionist. Let's have some fun! xoxo tiffani
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