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tiffani goff

tiffani goff

tiffani goff at home

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Did I jinx myself?

May. 24, 2013

tiffani goff at home

So I may have jinxed myself after talking about how great Tiara has been doing this past week.  Last night she was breathing funny during the night and kept tearing off her oxygen.  I must have gotten up 4 times to put it back on, check her oxygen level and then feel her chest.  She sounded really congested and was very restless.  When she woke up looking kinda puffy and then said “Doctor” as soon as she looked at me.  OMG, what the heck?

I got up put on her breathing treatment and then went to get the thermometer.  Her temperature was 99.8, is this a joke?  I started doing the pounding on her back to help loosen up any mucous and did the 3rd special breathing treatment. I then forced her to drink some water.  We just saw her Pulmonologist on Monday and he told me hydration and loosening any mucous in her lungs were the 2 most important things to address when I noticed a change in her breathing. 

I then gave her some Advil and cancelled our morning walk with a friend I haven’t seen in months.  I was super bummed about cancelling but I couldn’t take any chances of her getting worse.  She took her morning nap, played with her grandma, ate lunch and went back down for a nap.  She didn’t ask to go to Target or the park so we stayed home all day and I just watched her like a hawk.  She seems fine tonight and hasn’t spiked another temperature so I am praying it was some weird fluke.  Please be a fluke!

To be honest, I have been coughing which is super unusual for me.  I assumed it was an allergic reaction to all the stinky new dirt in the yard but now I am wondering if once again we picked up a virus. How we could pick up another virus with my constant hand sanitizing is beyond me, but anything is possible.

When I told Trinity about the temperature she said “Oh Mom, I bet you guys will be back in the hospital this weekend!” 

me: “What?”

Trinity:  “Mom, you know if she gets a temperature again tomorrow you are doomed.  You guys are so going back there.”

me:  “Let’s just think positive, I don’t want to spend another Memorial Day in the hospital.”

By the way, Tiara  has spent 2 Memorial Days in the hospital and I am determined not to make it a third. 

Either way, my husband who hasn’t been home in 5 days, or to be honest has worked open to close since the weekend finally came home early.  FYI, 6pm is now considered early or almost a half day.   That is how much he is working.   

The little girls were so excited to see their sweet Dad which gave Tabitha and I the opportunity to talk a walk around the neighborhood after dinner. 

tiffani goff at home
A few of my gardening books

I showed her all the houses I love, the styles I hated and all my favorite gardens.  I am completely over the top obsessed with my garden right now.  Last night I pulled out all my old gardening bibles and started mapping out my plans to incorporate more veggies, a Meyer lemon tree, a few more herbs and a million other plants.  I seriously have the gardening bug right now and I love it.  I always have to be thinking about a project to feel completely happy, weird but true. 

I am totally ignoring the fact that my allergy rash I have had for over 7 years is at an all time horror level from spending so much time in the garden and outside.  Oh well, what can I do?  As long as it stays off my face and doesn’t itch, I am ignoring it.

Anyways, I am hoping to buy some plants on Friday and plant them this weekend. 

I hope everyone has a wonderful Memorial Day weekend!

xoxo tiffani

tiffani goff at home

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Category: daily life with tiara Tags: for the home, happy moments, tiara & special needs, tuberous sclerosis

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Comments

  1. Janine Huldie says

    May 24, 2013 at 5:04 am

    Oh I am so hoping it is a fluke and you aren’t back in the hospital with Tiara this weekend. Am saying prayers and sending good thoughts your way. I, too, have had my older daughter running a fever off and on this week and may be back at the doctor with her. Just so ready for both my kids to be healthy for a longer stretch now!!

    • tiffani says

      May 24, 2013 at 7:52 am

      I know what you mean. When my girls were little like yours it seemed like someone was always sick. Have a great weekend!
      xoxo

  2. Mikela Nolan says

    May 24, 2013 at 8:43 am

    I take my daughter to the park a lot. I love it for her. She loves it. But she doesn’t have a weakened immune system and compromised lungs. Parks are petri dishes created by children with sneezy, snotty noses and sticky hands running around touching every single surface. No matter how much hand sanitizer you use, Tiara’s not going to avoid putting her hands into her mouth, eyes and nose during sanitizer wipe downs. And how many times has she sneaked a beverage that hasn’t been thickened? All contributing factors.

    You’re brave and optimistic, I’ll give you that. Those same traits allowed you to purchase white leather couches with an ink-loving Picasso at home.

    Ultimately, sticking her inside a plastic bubble isn’t tenable – nor does it provide any quality of life for either of you. But when she’s well again, you might consider outings that avoid places known for high contamination.

    Just a thought. Take it or leave it.

    • tiffani says

      May 24, 2013 at 4:31 pm

      That made me laugh! She got a shot of antibiotics this morning and is on oral meds now so I am hopeful it will work. She is being her regular rude self so that is a good sign.

      • Mikela Nolan says

        May 24, 2013 at 5:10 pm

        I agree, rude = healthy. Here’s hoping you have a very rude and obnoxious Tiara this weekend and, therefore, stay the Hell out of the hospital.

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Who is tiffani?

Mom, Wife, author of Loving Tiara, retired home stager, and chronic volunteer. I laugh when I'm happy, nervous, or stressed, so basically, I'm always laughing, and you can hear me from down the block if the windows are open. I love to swear even though it isn't ladylike, and I'm brutally honest, but in a super nice way, or so I think? I tend to roll my eyes, and apparently, my face is very expressive because even when I don't open my mouth, everyone knows what I'm thinking. My hubby and I are homebodies; I'm obsessed with always doing the "right thing " and taking care of my skin. I love learning, am always trying to evolve as a human being, and am a bit of a perfectionist. Let's have some fun! xoxo tiffani
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