As I have mentioned before Tiara has a Lifeproof case on my ipad, which is now her ipad. It has been slammed, thrown, smashed and tossed over fences. Last week she threw it over the side fence and it landed on the edge of the neighbor’s pool. The headphones landed in the water but the…
daily life with tiara
The swing is here!
Friday was the day the swing was supposed to arrive but since we had an open house scheduled, I almost forgot. The day was rather chaotic because Tiara was getting sick and didn’t want to leave the house for 3 hours but she didn’t have a choice. She had been coughing all night and kept…
The back to school bubble…
Since Trinity is my only child left in school, she gets all my hopes and dreams that this year will be better or at least not worse than last year. As we walked through the halls the first day she was hopeful it was going to be a good year as was I. I promised…
My mixed up day…
So my day started out like every other Wednesday and then somehow everything got chaotic. My mother in law came over to watch TT during her nap and I was walking Balboa Island with the same friend I have been walking with every Wednesday for the past 3 years when I received a text message…
Where is my swing?
As many of you know Tiara spends a great deal of her day sitting on our porch swing in the back yard. For the past 6 months she has become rather obsessed with swinging and jumping in the trampoline. I am pretty sure the motion is good for her brain and helps calm her. The…
It’s your choice, would you rather…
This is the question I posed to Lou on Thursday night : Would you rather clean the smeared poop out of the trampoline or give Tiara her bath? He looked at me and said, “Oh, you can choose honey, which would you rather do?” me: “clean the poop out of the trampoline.” lou: “Yes, I…
It was a blast!
We had the TS Alliance Southern California picnic on Sunday and it was tons of fun. So much so that I was too tired to write my post for Monday. So here is the weekend update. Saturday we had an open house from 2 to 5 and when I got home, I flopped down on…
The picnic is this Sunday…
This Sunday is our annual Southern California Tuberous Sclerosis picnic so I spent all of Thursday getting ready. In the past we used the park BBQ’s and cooked hamburgers and hot dogs but last year I ordered Subway sandwiches. The sandwiches were way easier, but tasted boring. This year I decided that the BBQ stressed…
My phone is broken again!
Every time I have tried to talk on my phone for the past 2 days all the call fail in the middle of my conversation. Super frustrating. I call them back and then the same thing happens over again. I was having issues with it earlier in the month and I made an appointment at…
Almost Wordless Wednesday strikes again…..
So these pictures represent a few hours of our Tuesday. Last but not least a video of Tiara during out walk, which Trinity insisted on filming and wanted it in the blog, so here it is. FYI, this is pretty much…