Just so you know, Tiara has not been swimming in a pool in 3 years. She absolutely loves to swim, but if you bring her around a pool she will just jump in whether she has a suit on or not and despite the fact that she doesn’t know how to swim. After years…
daily life with tiara
Why is everyone staring at us?
Why is everyone always staring at us? This is the question Trinity asks me every time we go out in public with Tiara. Trinity is 10 and at the age where she is noticing everything and everyone around her and is always embarrassed that people stare at us. I always tell her to ignore…
We got the stomach flu…..
Wednesday night/ Thursday morning Tiara woke up at 1am again. She kept making her usual demands, ipod, movie, crayons, pictures but then she started coughing. Oh crap, I ran to the cabinet and grabbed a towel. When she coughs more than 2 times in a row it means she is going to vomit. …
Tiara, soon to be a freshman….
I was just thinking about the end of the year activities for Trinity and realized that if Tiara was still attending school she would be graduating from 8th grade in a few weeks. How did that happen? Wow, I can’t believe that she is supposed to be going to high school in September. I…
Am I in trouble or what?
I mean if they passed out awards for giving the meanest looks, Tiara would win by a mile. She has always been very expressive with her face, which has enabled her to get her point across even when she couldn’t verbally communicate her wants, needs or dislikes. Even though she can now pretty much…
And her new place to color is?
As you can see, Tiara has taken her art to a new canvas, my walls, my doors and my kitchen cabinets. Last night when Lou came home I said “Hey, did you see the walls? Look what she did!” His response, ” So what, didn’t you do that same thing at 3 years old?”…
You have to take your medicine!
If you are a parent, I am sure you have had to administer the dreaded oral antibiotics that taste disgusting once or twice to your child. As you know, it is not fun or pretty. Sometimes it takes bribery and serious coercion to get the medicine down. Well, Tiara has to take 17 pills…
Another amazing trip to UCLA for the day….
So yesterday Tiara had a long overdue check up with her neurologist at UCLA. I have been trying to get her appointment since last December but they couldn’t get her in until yesterday. FYI, they have the best epilepsy department on the West Coast but you can’t really ever get in to see the…
Last year at this time….
As I have mentioned in previous blogs, I don’t usually dwell on the past. But because I have been trying to raise awareness for Tuberous Sclerosis this month, I keep thinking about this same time last year. It was during this same week after Mother’s Day that Tiara was supposed to be recovering from…
road trip in the prius…
So when you are reading this today all of us, except Tabitha, will be piled in my Prius driving to Northern California. Let me just tell you, Lou is so not excited to be driving “the tin can” up the 5 freeway. When we decided to make the trip for his Auntie…