The other day my friend offered to help me set up for the Tuberous Sclerosis picnic in August because I commented to her, “Lou will probably be working and not able to attend the picnic this year”. She said “Oh, I know what it is like to be a work widow, I will help!” …
daily life with tiara
Try not to laugh…
As I have mentioned or rather I think I have mentioned, Tiara has the worst table manners in the history of mankind, including cavemen. She has never been great in the table manners department but ever since her surgery last year her manners are non existent. We are not sure whether it is because she…
The backs of my legs are throbbing again!
I know this may sound really weird but whenever I get really stressed the back of my legs behind my knees, throb and pain. Has this ever happened to you? It started last year when Tiara was in the hospital for 3 months. At first I thought it was from sitting upright in a chair…
I only had to do the Heimlich once, but we survived!
So, as most of you know, I took Tiara to the fair yesterday. It was super humid and hot but I decided to forge ahead and follow through with my plan. At 3:30 Trinity and I loaded up the car, with 15 cans of food because every person who brought in 5 cans before…
Do we dare try again?
It is fair time again, and yes my family loves the fair. Tabitha and Trinity actually ride all the frightening crazy rides designed for adrenaline junkies. Apparently my girls get this from Louie because I feel sick just watching the rides and can’t be persuaded to ride anything at the fair. I am…
Where is the brush?
You may find this hard to believe but it is practically impossible to find a brush in our house. You are probably thinking, well if you just keep it in a drawer I am sure it will be there tomorrow when you look for it. If only it was that easy. The truth is…
Magic Mike and Fifty Shades of Grey all in one week…
For the past week I have heard the opening monologue from “Magic Mike” several times a day, courtesy of Tabitha. “THE RULES ARE: YOU CAN LOOK BUT YOU CANNOT TOUCH, BUT I SEE A LOT OF LAW BREAKERS IN THE HOUSE TONIGHT”. The crowd roars and all the ladies squeal, including my daughter. …
Re-entry is always hard…
So I am forgoing my normal Monday post , My Journey with Tiara, as I am way too emotionally and physically tired, to rehash Tiara’s past medical history. In addition, that post always takes me several hours to write and I don’t have several hours to spare today as I am having 11 people…
I hate your face!
I bet you have never heard the expression, “I hate your face,” until today. Well in our household it is a very common expletive that Tiara yells to different people throughout the day at least 20 times, starting first thing in the morning. When we first heard it we couldn’t help but laugh because…
My first spray tan, with Tiara in tow….
Just so you know, Tiara is now totally obsessed with the beach, which means I will be in a bathing suit all summer. I am so not happy about this. I think I have gotten away with barely exposing myself the past few summers because she wasn’t swimming, but now that has all changed…