I am not sure about you, but I kinda have this sixth sense about people’s personality from the moment I meet them. This isn’t me “judging a book by its cover, but something a little deeper. I will go out on a limb and say 98% of the time my initial assessment of someone…
daily life with tiara
Super weird side effect from a new seizure medication
Last month, Tiara’s neurologist prescribed her a new seizure medication that just came on the market, called Potiga. Even though Tiara is only having a few seizures each day, which is super fabulous for her, she is so sedated she can’t do much until the afternoon each day. Our plan was to add this…
A crayon fundraiser for Tiara!!!
This past Saturday morning Tiara had a big surprise. Avalon, a 6th grader at Newport Heights Elementary, my Alma mater, came over to our house with her Mom, Gina and brought with them boxes and boxes and boxes of crayons. WOW! Tiara was so excited she kept saying “thank you, thank you, your welcome,…
I had quite the scare today!
Today was one of those days where everything didn’t go exactly wrong, but just different than I planned. Tiara and I usually walk with a friend on Wednesdays but this morning I had an early auction meeting for the school at 8:15am. My plan was to do Tiara’s medicine a little early and bring…
Just when I thought it was getting better, everything went back to normal
So, I have to say this weekend, which I was dreading, turned out to have some really surprising high points. Trinity and I took Tiara to Target and the market on Friday, two public places in one day, is really pushing it, and at both places, she actually walked, wasn’t in her wheelchair, and…
Have you ever screamed so hard, you wet your pants?
Well, I screamed so loud and so aggressively yesterday, I practically peed my pants. It so serves me right, as I was bragging just two days ago, about how I know how to clean up any crazy mess. Well, Tiara showed me. Last year when Tiara was in a coma, I used to…
Why does everything have to be so hard?
As I have mentioned, my husband recently changed jobs. With a new job comes new insurance. For most families I am sure that is stressful but for our family it can be traumatic. Years ago when Louie was interviewing for new jobs, I used to beg him to ask what kind of insurance they…
Have you ever had to rescue someone at the beach?
So today a near miracle occurred. Lou had the day off, and we have a new caretaker who just started, provided by the Regional Center, who is really eager to learn but still very green. With that in mind, Lou took Trinity to beach volleyball camp, I took Tiara for a walk and then…
A great day in more than one way…
First of all today was our yearly birthday celebration for my 2 nephews and one niece. Since they have been old enough to go on rides Lou has taken them every August to an amusement park or the fair for their combined birthday present. We started this tradition about 5 years ago and it…
I quit today, anyone want my job?
So, I had my post almost finished around 1pm today and then somehow it magically disappeared and was deleted with a quick key stroke I couldn’t repeat if my life depended on it. I started to rewrite it later in the day but then all hell broke loose and I resigned myself to the…