Good news! Tiara is off the bipap and is on a regular oxygen mask. She thinks she is all better so my whole purpose in life has been to stop her from tearing off her leads, pulse ox, and oxygen mask all day! The nurse just asked me if I felt like I was playing…
daily life with tiara
My mini blogging vacation turned into another hospital stay…
It’s 7am on December 31, 2012 and once again I find myself sitting in the ICU at CHOC watching Tiara sleep. In my last post I mentioned everyone was getting sick so I was taking a mini vacation from blogging because I sensed I was going to be spending most of my time taking care…
And now 2nd degree burns…
Saturday night was Lou’s work party and I spent the day getting everything in the house perfect and my outfit ready since I was going to be spending the night in Ontario. Whenever I leave the house overnight I am rather neurotic about making sure all laundry is done, everything is in it’s place and…
We survived another hurdle…
5:00 am Monday morning……… Last Thursday I took Tiara to the doctors because I knew she had a sinus infection. She had been working on a cold and I had been doing everything in my power to avoid it going into an infection but I lost. She woke up Thursday with a fever and…
Am I really that embarrassing?
I think I have mentioned before that Trinity is constantly embarrassed by my presence. It still shocks me at times and today she really threw me for a loop. When Tiara and I pick her up from school everyday we used to walk onto campus and wait with all the other parents. I would…
Thank Gosh it’s Monday!
Seriously, this Thanksgiving weekend felt like it was a month long with Saturday and Sunday lasting 3 of the 4 weeks. We just got home from our normal Sunday lunch at Fashion Island and I barely survived the car ride home. Just before we left the mall, Tiara pushed back her wheelchair and ran over…
I tried to take the day off…
I tried really hard not to write this post because I am functioning on 3 hours of sleep and that is NOT an exaggeration, but of course I couldn’t help myself. In the past 14 hours I have been in the emergency room, to UCLA for a check up and at another doctor’s office for…
The crayons have taken over!
If you are ever unfortunate enough to experience a ride in my filthy car, this is what you would see when you look up. I know, crazy right? Everyday the marks somehow seem to grow and encompass more of the roof area. Every time my Mom gets into my car, she literally cringes when…
Guess who’s turning 14 today?
My middle angel, Tiara, is turning 14 today. Well, in reality her actual birthday is Saturday, October 27, but we are celebrating tonight because Tiara can only handle one day of celebration. When Tiara was a little girl we used to do what most families do for their children’s birthdays. If the special day…
Pulled a doctor maneuver and now I am stressing I screwed up!
Not sure what I am in the mood to write about today. OK, enough wavering, I will tell you how Tiara slammed her thumb in the car door on Saturday morning after she let herself out of the front seat even though I kept telling her to wait for me as I put up the…