My middle baby, Tiara Jeanne Goff passed away from complications related to Tuberous Sclerosis at home on January 15, 2015, surrounded by her family. She was 16 years old. We placed her on hospice December 31, 2014 but I made it sound like a positive move to those who follow me on Facebook. I was…
daily life with tiara
Not much has changed….
I just read my last post, because I couldn’t remember how Tiara was doing at that time or what I wrote well over 3 months ago, but after reading it, I realize not much has changed. I continue to receive emails, messages, and fb posts from readers asking for an update on Tiara. I know…
Sometimes there are no good options….
Today I cried in front of Tiara’s neurologist as I described our life and Tiara’s current state. Tiara is completely drugged most of the day, but not a good drugged. She is drowsy, irritated and frustrated and can’t stop eating. She has gained 30 pounds since April and crawls most of the time because getting…
In and out in less than 24 hours….
I have been silent on my blog for over a week and after posting an update on Facebook regarding Tiara and her possible admittance to the pysch ward at UCLA, I went dark. I was so devastated thinking about leaving her in the hospital alone, I couldn’t really talk about the situation to anyone except…
I’m fine, not really!
Of course I’ve missed you all but I am sorry to report the move was worse than I could have ever imagined. Lou and I have never been more physically and or emotionally challenged, as we are right now. We moved in to our new house a week and half ago, and I have just…
I think I’ve aged 10 years this month…
I can’t even remember the last time I posted and in my mind I’m not even a blogger anymore, but here is a little update on our life. I have spent every waking moment looking for rentals since the last time you heard from me. Everything is going great with the sale of our home…
Can you sleep anywhere?
Growing up I was one of those people who couldn’t sleep in an unmade bed, a messy bed or any bed other than my own. I mean would have sleepovers with my friends but the next day I was trashed and needed a nap. Ridiculous I know but in order for me to sleep, everything…
I was meant to do this…
I have so many things to update you on but let’s start with what’s on my mind this exact minute. It’s the book I am currently reading, “Carry on, Warrior the power of embracing your messy beautiful life” by Glennon Melton. I received this book as a gift for Mother’s Day from one of my…
Hmmm, poop in my eye…
Last night when I fell asleep, the contact in my left eye refused to leave my eye. I don’t know what it is with me and my contacts but at least once or twice a week, one of my contacts magically disappears around my eyeball and I can’t find it anywhere. I can feel it…
Is it a necessity? If not, I’m out…
Have you wondered where I went? Well, I am still here, but hanging on by a thread. I am writing this on Saturday afternoon and it is the first day in 7 days I have sat down at my computer. Why? Because I have been painting and scrubbing my house from top to bottom. It…