I have turned into a full bah humbug this Valentine’s Day. Every year I make homemade cards for my family and bake a yellow heart shaped cake with chocolate frosting, but this year, I’ve got nothing.
Aside from the fact that I am exhausted and worried about Tiara, I just have no desire to take my free time and spend money on expensive cards and candy. Since I have no energy to make my own cards what is the point? See what a bad attitude I have this year?
Yesterday morning I made this announcement to the family, “Ok, tomorrow is Valentine’s Day and I haven’t bought any of you a card or a present so please don’t be disappointed when you wake up tomorrow and I have done nothing.” Big smile. “Love you!’
Lou: “Sounds good to me, I haven’t bought anyone anything either, and I am working bell to bell today, so I won’t ever have time to leave the dealership to pick up anything”
Tabitha sighs, Tiara doesn’t know what I am talking about and Trinity could care less since she gets an ice cream sundae party at school.
Are you thinking, “get on with the Valentine’s talk Tiffani and fill us in on Tiara?”
I think this because each time I skip a day of posting my phone gets blown up with worried people wondering how she is. So how is she? The exact same.
Still puffy, still holding her urine, still forcing her to drink, having lots of staring off seizures and still doesn’t have the strength to walk on her own or get up from a seated position by herself. She has seen her pediatrician twice this week, I talk to him on the phone everyday and I almost have an appointment with nephrology. How can you almost have an appointment?
Well they know I want an appointment, her doctor has sent them the referral, they have received part of her medical records but until they have everything in their hot little hands they refuse to schedule. They should have everything by today, so I am hopeful we will get an appointment soon.
In the mean time I am just watching her close. The humor in this whole situation…. You should see me get her off the ground by myself. Now that is funny. She can get to her knees, but then I have to pull her up the rest of the way. Since she now outweighs me by 80 pounds, I have to take a sumo wrestler stance and end up grunting and almost falling over backwards as I finally get her up. She usually ends up with her shirt up by her ears and I am out of breath as if I ran around the block. My shoulders are sore and Lou keeps telling me to bulk up on the protein since I am lifting so much. Really? He even suggested some weird weight lifters formula I should try, NOT.
Anyways, it really is funny watching us try and navigate the day without a 3rd person. Once her caretaker arrives all is good but that is only 20 hours a week with leaves me with 148 hours to navigate by myself.
Hope each and every one of you has a great Valentine’s Day!